Abstract
The treatment of Celiac Disease (CD) is a strict and permanent gluten-free diet (GFD). Factors exist that influence adherence: motivation, information, costs, correct labeling and food availability.
Objectives: Describe adherence and impact of GFD in children with CD.
Patients and Methods: Prospective descriptive study, through application of a 28 question survey to children 12-18 y.o. with the disorder, and parents of children 3-18 with the disease.
Results: Median age: 10.5 years, 1.8 years at diagnosis. 62.5% women. Adherence to treatment was seen in 42,5% of patients according to parents, 15% according to children > 12 yrs. vs 35% parents of children > 12 y.o. 80% of children state feeling no different on a diet, 70% find the diet hard to follow. 55% have difficulty following the diet, among them, 42,8% are not sure what they can eat, 51.5% state it creates financial distress in the family. About 55% believe it affects family life due to the following: 55% food limitation, 50% food preparation, 75% affect eating out, 35% affect traveling. 50% of parents have fed children a forbidden food, mainly at home (44%). Information regarding GFD is obtained at the hospital (85%). There is 32.5% adherence to CD foundations.
Conclusions: GFD impacts children's lifestyle with difficulty in adherence and management.
Los contenidos publicados en esta revista están protegidos bajo una Licencia Creative Commons Atribución 4.0 Internacional (CC BY 4.0). Esto significa que cualquier persona es libre de compartir, usar y construir a partir de este artículo, incluso con fines comerciales, siempre que se otorgue el crédito apropiado al autor original, se proporcione un enlace a la licencia, se indique el nombre y edición de la Revista.
Esta licencia no impone restricciones adicionales, lo que garantiza la libre circulación y reutilización del conocimiento con respeto y transparencia hacia los derechos de los autores. (Véase El efecto del acceso abierto).